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Health library/Primary ciliary dyskinesia

Rare respiratory disorders / RARE CONDITION

Primary ciliary dyskinesia

Also known as: CILD, Kartagener syndrome, PCD

Primary ciliary dyskinesia impairs microscopic structures that clear mucus from airways. Repeated respiratory infection and differences in organ position may occur.

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What you may notice

Symptoms can overlap with other conditions and vary between people.

  • Chronic wet cough
  • Repeated sinus or ear infections
  • Breathing problems from infancy
  • Fertility difficulties in some adults

Understanding care

Clinical care may include specialist respiratory and genetic assessment with infection and lung-function monitoring. A qualified clinician decides which investigations and options fit the individual situation.

When to seek help

Report worsening cough, repeated infections or declining exercise tolerance to the specialist team. Severe breathing difficulty, blue lips, unusual drowsiness or coughing blood needs urgent assessment.

For severe breathing difficulty, collapse, suspected stroke, or another emergency, call local emergency services immediately. In India, call 112.

Read the medical sources

These sources support the educational article and offer more detail.

Educational reading · Updated 6 October 2026

Prepared from the linked sources. This summary has not had an independent clinician review. A qualified clinician can assess symptoms and explain which information applies to you.

A child and a caring grown-up reading a picture book together

LITTLE PEOPLE. BIG FEELINGS.

It’s okay to have
a lot of questions.

A doctor visit or an unfamiliar health word can feel scary. You can ask a trusted grown-up to help you understand, one small question at a time.

01

Say how you feel.

“I feel worried” is a good place to start.

02

Ask for simple words.

“Can you explain that in a way I understand?”

03

Bring someone you trust.

A caring adult can help you ask and listen.

For children and their grown-ups. This illustration explains a conversation, not a diagnosis. An adult should seek qualified care for a child who is unwell.

Primary ciliary dyskinesia — First AID health library