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Rare kidney disorders / RARE CONDITION

Alport syndrome

Also known as: Congenital hereditary hematuria, Hematuria-nephropathy-deafness syndrome, Hematuric hereditary nephritis, Hemorrhagic familial nephritis, Hemorrhagic hereditary nephritis, Hereditary familial congenital hemorrhagic nephritis

Alport syndrome affects structural proteins important to the kidneys and other tissues. Progressive kidney disease may occur alongside hearing or eye changes.

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What you may notice

Symptoms can overlap with other conditions and vary between people.

  • Blood in urine
  • Protein in urine
  • Hearing loss
  • Eye abnormalities

Understanding care

Clinical care may include genetic and kidney assessment with hearing, eye and renal monitoring. A qualified clinician decides which investigations and options fit the individual situation.

When to seek help

Report poor growth, excessive thirst or urinary changes to the specialist team. Severe weakness, dehydration, very little urine or fever with acute illness needs urgent assessment.

For severe breathing difficulty, collapse, suspected stroke, or another emergency, call local emergency services immediately. In India, call 112.

Read the medical sources

These sources support the educational article and offer more detail.

Educational reading · Updated 6 October 2026

Prepared from the linked sources. This summary has not had an independent clinician review. A qualified clinician can assess symptoms and explain which information applies to you.

A child and a caring grown-up reading a picture book together

LITTLE PEOPLE. BIG FEELINGS.

It’s okay to have
a lot of questions.

A doctor visit or an unfamiliar health word can feel scary. You can ask a trusted grown-up to help you understand, one small question at a time.

01

Say how you feel.

“I feel worried” is a good place to start.

02

Ask for simple words.

“Can you explain that in a way I understand?”

03

Bring someone you trust.

A caring adult can help you ask and listen.

For children and their grown-ups. This illustration explains a conversation, not a diagnosis. An adult should seek qualified care for a child who is unwell.

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Alport syndrome — First AID health library